7 Facts About Hidradenitis Suppurativa

HS is a chronic skin condition that takes many forms, including small, pimple-like bumps, deeper acne-like nodules, or even boils. It’s also known as acne inversa. Here are the 7 most important things you need to know and remember about Hidradenitis Suppurativa.

• It is often misdiagnosed

Since research about HS is fairly new, not a lot of people know about HS and it can often be misdiagnosed. Sometimes it’s misdiagnosed as acne, ingrown hairs, recurrent boils, or just bad hygiene.

• It’s not an STD

HS breakouts can occur on your inner thighs or near your genitals. However, it’s not an STD. It is not contagious and cannot be transmitted through sexual activity.

• The cause is not known

Although there’s no known cause, there are some theories. HS is most likely to occur after puberty, so hormonal changes may be a factor. Genetics may be another factor; one-third of people with acne inversa have a close relative who has it, too. You may also be at risk if your immune system overreacts when you have a clogged hair follicle. This can lead to flare-ups.

• There is no cure

One of the hardest things to hear about HS is the fact there is no cure. However, HS treatment is continuing to evolve to meet our needs and help us manage the painful symptoms of the condition. If you’re diagnosed early on and start treatment, you’ll be able to enjoy a very good quality of life.

• It’s not as rare as you think

Did you know that up to 4% of the general population have HS? That is potentially over 301 million people. People all over the world are living with HS.

• HS can affect more than your skin

HS can take not just a physical toll, but an emotional one as well. The stigma associated with HS can make people feel ashamed of their bodies. They may find it easier to isolate themselves than face the scrutiny of strangers.

• The HS community is large and welcoming

There are HS communities all over the internet. From Facebook to Twitter to Tumblr. These online communities can be a great way to meet other people who understand what you are going through. Always remember that you’re not alone, and there are HS resources and support groups you can always reach out to.